Blog
The Official Blog of the University Health Network’s Red Blood Cell Disorders Clinic. Stories that matter.
THE RBCD HUB // BLOG
Conquering Anxiety and Depression for a Healthier You: A Free Workshop for Young Adults with Sickle Cell Disease
The University Health Network's Red Blood Cell Disorders Clinic and the Centre for Mental Health are delighted to partner with Unsinkable to provide a free workshop!
This workshop is for young people (ages 18 to 35) with sickle cell disease. It will take place online on Wednesday February 19, 2025 from 7:00 PM to 8:30 PM.
5 Tips for Dating as a Woman with Sickle Cell Disease
Women with sickle cell disease deserve healthy and loving relationships. Here are five tips for dating from a woman with sickle cell disease.
The RBCD Hub goes to CanHaem!
In September 2024, the RBCD Hub’s Vanessa Ferguson and Sinthu Srikanthan were invited to speak at the Canadian Hemoglobinopathy Association’s (CanHaem) annual conference in Halifax, Nova Scotia about the intersections of racism and disability with sickle cell disease (SCD) and thalassemia.
Stroke and Sickle Cell Disease: One Person’s Story
Some people with Sickle Cell Disease may be at increased risk of experiencing stroke – which is when blood flow to the brain is blocked or there is bleeding in the brain. Stroke is life-threatening and scary. While stroke can result in many changes to one’s life, people can lead new and meaningful lives after stroke. This article describes the journey of one person with sickle cell disease who experienced stroke.
Managing Sickle Cell and your Menstrual Cycle
“You will hit puberty later than expected due to your Sickle Cell” – the conversation usually stops there. As children, many of us were not given much information on the signs or possible symptoms to look out for to indicate that the menstrual cycle has begun.
The Trillium Drug Program
We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores the Trillium Drug Program, with a special focus on people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.
UHN Health Talks: Sickle Cell Disease
To honour Sickle Cell Awareness Month, the RBCD Hub partnered with UHN Patient Education and Engagement to deliver a Health Talk on Sickle Cell Disease.
Employment Insurance Sickness Benefits
We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores Employment Insurance (EI) Sickness Benefits, with a special focus on people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders (RBCDs)
Applying for the Ontario Disability Support Program (ODSP - Part 2)
We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores applying for the Ontario Disability Support Program (ODSP), with a special focus on people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders (RBCDs) .
What is the Ontario Disability Support Program and how can it help me? (ODSP- Part 1)
We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores Ontario Disability Support Program and how it can be helpful for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders (RBCDs) in Ontario.
Helpful College and University Supports for Students with Red Blood Cell Disorders
From supporting your mental health to dealing with grade appeals and discrimination, public colleges and universities in Ontario have a range of services that can help you achieve success and wellbeing. This article summarizes supports at college and university that may be helpful for students with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.
Tips for Success and Wellbeing for International Students with Red Blood Cell Disorders in Ontario
Going to college or university abroad is an exciting opportunity for new learning experiences for International Students. This article provides six tips for success for International Students with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders in Ontario.
Bursaries and Grants for Post-Secondary Students in Ontario with Red Blood Cell Disorders
This article explores bursaries and grants available through the Governments of Ontario and Canada for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders. These are supports available at time of publication. Please be aware that they can change at any time. You may qualify for additional grants, bursaries, and scholarships.
Post-Secondary Accessibility Services for Students with Red Blood Cell Disorders
September is the time of year that many college and university students return to school. This can be a stressful time for people living with a chronic medical condition or disability. Students with Sickle Cell Disease, Thalassemia, and other red blood cell disorders can connect with their school’s Accessibility Office to explore support options.
Health Talks: Sickle Cell Disease
The RBCD Hub is excited to partner with UHN’s Patient Education and Engagement to deliver a Health Talk on Sickle Cell Disease!
The RBCD Hub Celebrates Sickle Cell Awareness Day
June 19th is Sickle Cell Awareness Day – a day dedicated to increase knowledge and awareness of Sickle Cell Disease as well as to provide support for impacted people.
Counter-Storytelling for Social Change - Part 2: Miss Lillie Johnson
Counter-Storytelling is “a method of telling the stories of people whose experiences not often told.” By telling these stories, we can expose, analyze, and challenge racism as well as promote social justice. In this series, we tell counter stories to highlight the challenges and triumphs around community advocacy and Sickle Cell Disease. Beginning in the 1960s, Black Nurses in Canada and the United Kingdom, who were also battling workplace anti-Black racism, advocated for care for Sickle Cell Disease. In honour of Nursing Week, this article explores counter-storytelling through some of the many accomplishments of the Canadian Sickle Cell advocate, Miss Lillie Johnson.
The RBCD Hub Celebrates Thalassemia Awareness Day!
May 8th is Thalassemia Awareness Day – a day dedicated to increase knowledge and awareness of Thalassemia as well as to provide support for impacted peoples.
Key Traits of People with Thalassemia that make them Great Corporate Professionals
Knowing yourself means knowing about your strengths and your weaknesses. When you have a chronic disorder, like Thalassemia, everything may seem like a weakness. However, if one looks deeply enough, one may see that this is not the case.
Counter-Storytelling for Social Change - Part 1: The Black Panther Party
Counter-Storytelling is “a method of telling the stories of people whose experiences not often told.” By telling these stories, we can expose, analyze, and challenge racism as well as promote social justice. In this series, we tell counter stories to highlight the challenges and triumphs around community advocacy and Sickle Cell Disease.
This article explores counter-storytelling through the lens of the Black Panther Party.