In September 2024, the RBCD Hub’s Vanessa Ferguson and Sinthu Srikanthan were invited to speak at the Canadian Hemoglobinopathy Association’s (CanHaem) annual conference in Halifax, Nova Scotia about the intersections of racism and disability with sickle cell disease (SCD) and thalassemia.

Some people with Sickle Cell Disease may be at increased risk of experiencing stroke – which is when blood flow to the brain is blocked or there is bleeding in the brain. Stroke is life-threatening and scary. While stroke can result in many changes to one’s life, people can lead new and meaningful lives after stroke. This article describes the journey of one person with sickle cell disease who experienced stroke.

“You will hit puberty later than expected due to your Sickle Cell” – the conversation usually stops there. As children, many of us were not given much information on the signs or possible symptoms to look out for to indicate that the menstrual cycle has begun.

We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores the Trillium Drug Program, with a special focus on people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.

To honour Sickle Cell Awareness Month, the RBCD Hub partnered with UHN Patient Education and Engagement to deliver a Health Talk on Sickle Cell Disease.

We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores Employment Insurance (EI) Sickness Benefits, with a special focus on people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders (RBCDs)

We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores applying for the Ontario Disability Support Program (ODSP), with a special focus on people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders (RBCDs) .

We all need an umbrella for rainy days. The “Umbrella for Rainy Days” series describes income support (financial assistance) programs. This article explores Ontario Disability Support Program and how it can be helpful for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders (RBCDs) in Ontario.

From supporting your mental health to dealing with grade appeals and discrimination, public colleges and universities in Ontario have a range of services that can help you achieve success and wellbeing. This article summarizes supports at college and university that may be helpful for students with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.

Going to college or university abroad is an exciting opportunity for new learning experiences for International Students. This article provides six tips for success for International Students with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders in Ontario.

This article explores bursaries and grants available through the Governments of Ontario and Canada for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders. These are supports available at time of publication. Please be aware that they can change at any time. You may qualify for additional grants, bursaries, and scholarships.

September is the time of year that many college and university students return to school. This can be a stressful time for people living with a chronic medical condition or disability. Students with Sickle Cell Disease, Thalassemia, and other red blood cell disorders can connect with their school’s Accessibility Office to explore support options.

The RBCD Hub is excited to partner with UHN’s Patient Education and Engagement to deliver a Health Talk on Sickle Cell Disease!

June 19th is Sickle Cell Awareness Day – a day dedicated to increase knowledge and awareness of Sickle Cell Disease as well as to provide support for impacted people.

Counter-Storytelling is “a method of telling the stories of people whose experiences not often told.” By telling these stories, we can expose, analyze, and challenge racism as well as promote social justice. In this series, we tell counter stories to highlight the challenges and triumphs around community advocacy and Sickle Cell Disease. Beginning in the 1960s, Black Nurses in Canada and the United Kingdom, who were also battling workplace anti-Black racism, advocated for care for Sickle Cell Disease. In honour of Nursing Week, this article explores counter-storytelling through some of the many accomplishments of the Canadian Sickle Cell advocate, Miss Lillie Johnson.

May 8th is Thalassemia Awareness Day – a day dedicated to increase knowledge and awareness of Thalassemia as well as to provide support for impacted peoples.

Knowing yourself means knowing about your strengths and your weaknesses. When you have a chronic disorder, like Thalassemia, everything may seem like a weakness. However, if one looks deeply enough, one may see that this is not the case.

Counter-Storytelling is “a method of telling the stories of people whose experiences not often told.” By telling these stories, we can expose, analyze, and challenge racism as well as promote social justice. In this series, we tell counter stories to highlight the challenges and triumphs around community advocacy and Sickle Cell Disease.

This article explores counter-storytelling through the lens of the Black Panther Party.

The University Health Network's Red Blood Cell Disorders Clinic is inviting patients, families, and caregivers impacted by Sickle Cell Disease, Thalassemia, and other Red Blood Disorders to join us for a FREE Five-Part Wholistic Health Series.

On January 26, 2023, Ontario Health launched new health standards to improve care for people living with Sickle Cell Disease (SCD), setting the stage for high quality care.