Six steps to find a family doctor or nurse practitioner for your primary care in Ontario

Some people with Sickle Cell Disease may be at increased risk of experiencing stroke – which is when blood flow to the brain is blocked or there is bleeding in the brain. Stroke is life-threatening and scary. While stroke can result in many changes to one’s life, people can lead new and meaningful lives after stroke. This article describes the journey of one person with sickle cell disease who experienced stroke.

To honour Sickle Cell Awareness Month, the RBCD Hub partnered with UHN Patient Education and Engagement to deliver a Health Talk on Sickle Cell Disease.

The RBCD Hub is excited to partner with UHN’s Patient Education and Engagement to deliver a Health Talk on Sickle Cell Disease!

On June 15, 2023, UHN’s RBCD clinic hosted the fourth session of the Wholistic Health Series with Mindfulness Advocate, Reena Ruparelia. This session explored how to mindfulness meditation practices and its benefits for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.

On June 1, 2023, UHN’s RBCD clinic hosted the third session of the Wholistic Health Series with Certified Health Coach, Aisha Saintiche. This session explored how to take ownership of mental health and wellness, including five steps to take to support mental wellness as well as creating a personal mission to guide our lives.

While Sickle Cell Disease is primarily known as a physical condition, it can have a significant toll on a person's mental well-being. Studies have revealed that Sickle Cell Disease can trigger a range of mental symptoms such as anxiety, depression, poor nutrition, and stress. The chronic nature of the illness and the recurring episodes of pain and physical limitations can be stressful.

On May 18, 2023, UHN’s RBCD clinic hosted the second session of the Wholistic Health Series with Certified Health Coach, Aisha Saintiche. This session explored Intersectionality and Mental Health, including how Anti-Black Racism, Racism, Ableism, and health-related stigma impacts mental health and wellbeing for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.

On May 4, 2023, UHN’s RBCD clinic kicked off our Wholistic Health Series with Certified Health Coach, Aisha Saintiche. This session explored mental health and why it matters for people with Sickle Cell Disease, Thalassemia, and other Red Blood Cell Disorders.

As a child, I learnt ways to drown out the noise on the outside by managing the noise on the inside. Pain never showed on my face.

It is Tiana’s 6-month follow-up appointment. She is sitting in the clinic room, looking around on the wall. Tiana notices research studies, the computer on the desk, and the medical equipment around her. As Tiana takes in the clinic, she begins to gather her thoughts about her health from the past six months to share with her doctor.

The University Health Network's Red Blood Cell Disorders Clinic is inviting patients, families, and caregivers impacted by Sickle Cell Disease, Thalassemia, and other Red Blood Disorders to join us for a FREE Five-Part Wholistic Health Series.

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From the time we are born, we are asked as children, ‘what do you want to be when you grow up?’ Then, from childhood to adulthood, you change your mind, probably…

People who live with sickle cell disease (SCD) are constantly fighting to overcome whatever complications and challenges that head our way…